teamgreene: Our life after transplant

A continuation of our journey from pre-transplant to post-transplant and beyond.

Thursday, May 13, 2010

Wednesday Update w/Joel

Morning Teamgreene Nation! No additional seizure activity to report...thank God! On an aside, this is the FIRST seizure he's had that I have not been there for; not sure if that's good or bad, but Lexi did a fantastic job! For you new Lexi fans, she's as sweet as she is cute.

Now, as for Riley, we've started him back on Kepra to prevent seizures. He was taken off this after the results of the EEG showed no abnormal brainwave activity...guess he was just playing possum.

Yesterday was an off day for us all, so Riley didn't get to school until late afternoon. Lexi called on their way in and said Riley was completely naked in the back seat (I think I need to work with him on playing a little harder to get!) For whatever reason, this seems to be his new thing. Back to school, he did pretty well again, but they did leave early when he started getting a little fussy.

I did find out yesterday that on his first day of school, during lunch, he started saying "A sip of beer". All 7 year olds do this, right?!?! I'll have to remind him liquid lunch has to wait till Friday.

Riley is continuing to show improvement in his mood and walking. Lexi has him walking without the gait trainer and holding only 1 hand! He is so entertaining when he walks; sort of looks like a combination of a preacher at the pulpit and me walking home from a bar back in the day. The preacher aspect is when he uses his free hand to gesture, the me part is walking "erratically"...hey, I was in college! One thing we're not too crazy about is when he using his fussy sounding tone when he is actually happy. Regardless, as long as he's happy and talking, we're good.

Peace!

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