teamgreene: Our life after transplant

A continuation of our journey from pre-transplant to post-transplant and beyond.

Friday, November 20, 2009

Bump In the Road

Happy Friday. We got up this morning thinking we were going to run to the hospital and have a quick echocardiogram and chest Xray and be home by lunch time. We are still here...

Riley did not enjoy the echo even though it is not painful. It is basically like having a sonogram when you are pregnant. He just doesn't want to be messed with. The technician went to check with cardio after getting a ton of pictures and told us to hang tight incase they wanted more. Of course, they wanted more. While they were still getting more, the cardiologist came in and showed Joel and I what appears to be a clot or mass in one of the chambers of his heart. He had already called and let Dr. Martin know, who told the cardiologist to send us up when we were done to see him. It appears to be connected to the catheter connected to his new port. Both the cardiologist and Dr. Martin feel it is too soon after having the port put in for it to be from Wednesday's procedure. More likely, Dr. Martin feels it has probably been there awhile and is more like scar tissue. He said we may not have been able to see it before, but after having the port put in Wednesday and things being moved around, it may have made it able to be seen at a different angle.

The plan is to put TPA in the port (which they just finished doing), and have another echo done Monday to see if it is gone or smaller. Dr. Martin doesn't expect that anything will change, but as long as it is not any bigger, we should be okay to just have it checked again at our next appointment in 4-6 weeks. The worse part was having to access the port so soon after the surgery. I couldn't stay in the room while they did it. I sat outside with my fingers in my ears while Joel and the nurse handled Riley. Apparently the needle going in wasn't bad at all, feeling around to find the placement of the port was the worst of it.

As soon as I got back in the room, Riley was already back to smiling again. Now we just have to wait an hour to make sure nothing happens while the TPA is in, then we will be free to go until Monday. I asked Dr. Martin if this would keep us from leaving Monday and he said only if the mass is bigger on Monday, which he does not expect.

Our plan is to go ahead and start packing things up and getting ready for our trip home next week. Hopefully that is God's plan for us as well! Hope everyone has a great weekend. We are looking forward to visits from Shannon this evening and Brandy & Autumn tomorrow. Uncle Brian and Joel are going to a hockey game for Uncle Brian's birthday, which is Monday, so things should be busy here for us.

9 comments:

  1. We are all praying for things to go as planned! We love you all very much.

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  2. Prayers for the Greenes to have a HAPPY THANKSGIVING at home together . . . . praying for you all.

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  3. Continual prayers this too seeing you very soon Psalms 46:1 Kevin Mathews

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  4. Teresa,
    We are trusting God for a successful weekend and Monday for you..You guys have come soooo far...God is hangin' right there with you, as well as the rest of us...Many blessings....and..Happy Birthday Brian!!!
    Rhonda & Aunt Sue :~)

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  5. I know what you mean about accessing the port. I hate having to hold Olivia down when they come at her with the needle. The numbing cream really works (Olivia doesn't feel the needle go in at all) but it's still hard to hold her down for the prep and the part when they are feeling around to make sure they put the needle in the right spot. You're all in my prayers!

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  6. we are all praying for NO MORE BUMPS! Love you guys! Happy Thanksgiving!

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  7. Hi Teresa and family!
    Ya'll are still in everyones prayers. I read your updates almost daily and the progress that Riley has made and continues to make. I know ya'll can't wait to be home!
    I read a comment that Laurie posted about the numbing cream and how great it works. I just wanted you to know(in case they are not doing it and you want to inquire...)I have a port in my chest for my chemo and they gave me a tube of lidacaine which I smear a dab on me and cover with saran wrap for at LEAST 45 min before and I don't even feel the stick. I know how thorough you are and may even be aware of this little trick I call it, but just in case your not, I wanted you to know about it.
    Couple of weeks ago I had this poor old lady by me getting chemo who was in terrible pain as they were trying to access her port and they had not discussed this cream to her and when i told her about it she was elated and asked the nurse right away to get her a script for it, which they did without hesitation.
    So, if I can help anyone to feel more comfortable that is in this position, the better it makes me feel.
    Hope this helps!
    Love ya'll-Gwen

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  8. Loved the time I got to spend with you this weekend. Praying that everything goes well on MOnday and you get to go home to Chattanooga - however I will miss you in NC!

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