We started the day out meeting with the endocrinologist. Apparently Riley has only grown 1 inch since November 2009. It seems hard to believe because sometimes he looks so much taller to us. His growth has really slowed and we discussed the option of putting Riley on growth hormones, but I believe me, Joel and the doctor all came to the conclusion, that because of the constant care Riley requires, him staying a little smaller may not be a bad thing, and not having the growth hormone is not going to have any adverse effects.
This appointment was followed with pulmonary testing. Riley actually did better at participating than we thought he would. He had to wear a mask and breath deeply to try and register the results. After pulmonary, Riley had a hearing test that he didn't participate with quite as well. We are going to have to schedule this test in Chattanooga with sedation. He will be sedated Thursday for several tests, but they don't want to keep him out any longer to have the additional hearing tests.
After having labs drawn and vitals, we finished the day with a chest xray. After getting back to the hotel this afternoon, we had a great afternoon, including swimming, and LOTS of walking down the hotel hallways.
Tomorrow should be a an interesting day with nerve conductions tests.
Tuesday, March 22, 2011
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